Sunday, November 3, 2013

Thoughts after a year

In some ways it is hard to believe it has been a year since we added two children to our family, yet in others this has been a very long year.  We have spent a tremendous amount of time in doctor's offices and advocating for our new kids, and a lot of time just trying to figure out where they were and what we needed to do for them.  Adopting two children with complex medical issues with virtually no medical history or records makes those first medical appointments very interesting.  The most difficult issue is really the emotional--both the bonding as a family and the new kids adjusting to their new lives.

We made the decision in the summer to put the children in school.  There were times that I truly loved homeschooling, but this past year of constantly running to medical appointments as well as having more children of school age made homeschooling just too much for one person.  I am personally very opposed to unschooling, and there were not enough hours in the day for me to help 6 kids who cannot really work on their own much yet.  The three older children started this fall at a classical school.  I have been an advocate of classical schooling for some time and was attempting to follow The Latin-Centered Curriculum as a homeschooler, so that was an easy choice in schools.  John and Therese started Kindergarten at our local public school.  They are able to get physical and occupational therapy there every week, and they have the staff to help with the medical needs.  The logistics of packing 5 lunches and dealing with two separate schools requires a lot of careful scheduling but it has been very good for the kids.

Therese has changed tremendously in a year.  She has a very happy, silly, and spunky personality.  Her English pronunciation has gotten much better.  We really had no way to assess her verbal skills in Chinese but she was delayed at least to some extent, and she had a lot of trouble speaking clearly in English.  She is learning how to live in a family, but sometimes you still see that instinct for self-preservation that she used to survive in the orphanage.  She can be a bit of a troublemaker and tries to work the system wherever she is.  Usually the most annoying thing she does is talk.  I have never been around a child who was such a motor mouth.  I have to tell her to stop talking or she will never finish her food.  Her adjustment to her new sister was hard at first.  Catherine was ready to welcome her with open arms, but as a younger sister.  Therese was used to seeing other kids as competition and they locked horns constantly.  Catherine is a very tender and emotional person and didn't know how to relate to a little girl with such a tough shell.  Thankfully, they have become very close and spend a lot of time playing dolls together.  Therese especially loves dolls that she can do hairstyles for.  She LOVES to do hair, and she is obsessed with washing her own hair.  She would wash it until it fell off, if I let her. 

The biggest physical difference for Therese, of course, is walking.  After her clubbed feet were corrected, she got AFOs and was learning to walk, but after the first few months she was actually getting worse, not better.  She operated by crashing in between furniture or grabbing onto adult's legs, and she fell constantly.  It was very frustrating. I felt she needed physical therapy and pushed until we got a referral.  Since she started PT, we have gotten her fitted with DAFOs, made by Cascade.  I would do commercials for those things.  They are so much better than the AFOs she had.  Just the fact that they had some air vents at the heel was enough to sell me on them, after dealing with the horrible pressure sore she got in the spring.  The air vents combined with the extra strap at the ankle to reduce slipping have made her feet healthier.  We also got her fitted for twister straps, basically a wide nylon webbing belt, with straps that wrap around her legs and hook onto the toe of her DAFOs.  They fit under jeans and inside her shoes, so no one can really see them.  As we were working on helping her walk better we figured out that she just couldn't keep her toes pointed to the front, due to the muscle imbalances from the neurological damage.  She was walking by almost dragging her lower legs, with her weaker knee cranked in at a horrible angle that stretched out her ligaments.  The physical therapist told me that the way she was walking would destroy her knee joint in a few years.  I knew she looked horrible when she walked but I needed someone who would listen to me, watch her walk, and figure out how to solve it.  I love the physical therapist we found!  The twister straps have revolutionized her walking, and cut her falls drastically.  

I think I was very prepared for her medical needs, but deep down I really did hope that when we got her feet straightened she would be walking.  We had no idea of how much more difficult walking would be for her.  She has a significant scoliosis and her weaker leg is nearly an inch shorter than the other, which makes walking even more difficult.  Even with the PT and all her equipment, I don't know how growing will affect her abilities.  We are in the process of getting her a custom wheelchair, since she really cannot do long hallways or distances.  I will admit that the process of fitting her for a wheelchair has saddened me.  I really didn't want her to need it.  She, on the other hand, loved trying out the demo wheelchair and was whirling in circles like a waterbug and deliberately jousting with walls.  Luckily the pricey wheelchair was still in one piece when we had to return it, but little turkey had a black eye.  She was mad we were sending it back, but I pointed out that she wanted a pink one, so after that she relinquished it cheerfully.

When you take a young child from everything they have ever known, you can imagine it is difficult for them, but until we lived through this past year with John we had never seen what it was like.  The grieving has been very intense, and in most ways it has not improved a whole lot over the year.  He doesn't have the daredevil personality like Therese, plus he had about the best life an orphan in China could have, living at Eagle's Wings.  He was too young to know that the best future was in a family, and how much he needed the medical care he can get here.  His anxiety adds to his fixation on food.  In the month after he got home he gained a pound every week.  I hesitated to restrict his eating too much in the early phases as we were bonding, especially since we eat a very different diet and he wasn't eating junk food.  Then when it became two pounds in one week, we had to put him on a diet.  Over a year, he lost 10 pounds, and it has made him so much more mobile.  He can climb up the playground equipment on every side now, and he can walk to the park and back home again without puffing and panting.  Food is still a major issue for us and we are going to seek further medical help to sort out the emotional and physical causes of his desire to constantly eat everything in sight.  

In other ways, John is doing very well.  His English is fluent and his pronunciation is very good.  He is doing much better academically than his classmate sister, which I think shows how important programs like the one at Eagles' Wings are in giving kids a good start in life.  He is very intimidated by trying to interact and play with the more rambunctious boys, but he has made friends in his class and is learning how to deal with having three brothers, not to mention two bossy sisters.  He is getting better at pitching in at cleanup time.  It was apparent even before he could speak English that picking up toys was not one of his favorite activities.  It has been funny to watch him develop his new hobby of coloring.  I got him a coloring book when he had surgery early in the year, and since he didn't feel like playing he sat down and dutifully started working through the book like it was an assignment.  He would carefully color in the picture on a page, for example, of a bear, using one color, then using the same color he would carefully color the entire page.  I found this very amusing since to my logical adult mind it would have been easier to just color the whole page in the beginning.  Over the months, he has gotten into color and will spend a long time on each picture in his newest coloring book, making every detail a different color.  If they grade on coloring in Kindergarten, I think he will get a very good one!  

So there it is, the long-postponed update I have meant to write for nearly two months.  Mommy has to get up at 5 AM on school days to get everyone ready on time, so I do need naps, but we are doing well.  Now we just need to figure out how to get the laundry folded more often, and keep the house cleaner.  The clutter with 6 kids is unbelievable.  Tripping on toys all the time is making it hard for me to get enthusiastic about Christmas lists.  I suppose it wouldn't be very joyful if I gave each kid their own mops and scrub buckets, so I will probably allow gifts again this year, but smuggle out some of the old stuff when they aren't looking.  Auf Wiedersehen!